Chapter 8: Your Personal Care Team
115 Health care: Trudy Lieberman, Consumer Reports Complete Guide to Health Services for Seniors (Three Rivers Press, 2000), https://www.amazon.com/Consumer-Reports-Complete-Services-Seniors/dp/0812931475/.
115 read it online: “Health Care Journalist Struggles to Navigate Her Own Health Crisis,” Tarbell, February 25, 2019, https://tarbell.org/2019/02/health-care-journalist-struggles-to-navigates-her-own-health-crisis/.
119 free patient access: “UpToDate Subscriptions for Patients and Caregivers,” Wolters Kluwer, https://www.uptodate.com/home/uptodate-subscription-options-patients.
120 PatientsLikeMe: https://www.patientslikeme.com/.
120 The Patient Will See You Now: Eric Topol, MD, The Patient Will See You Now: The Future of Medicine Is in Your Hands (Basic Books, 2016), https://www.amazon.com/Patient-Will-See-You-Now/dp/0465040020/.
120 WEGO Health: https://www.wegohealth.com/.
121 community standards: “Community Standards,” Facebook, https://www.facebook.com/communitystandards/introduction.
122 National Finance Resource Directory: “National Finance Resource Directory,” Patient Advocate Foundation, https://www.patientadvocate.org/explore-our-resources/national-financial-resource-directory/.
123 Center for Improving Value in Health Care: https://www.civhc.org/.
124 2018 study: “Assessment of US Hospital Compliance with Regulations for Patients’ Requests for Medical Records,” Journal of the American Medical Association (JAMA), October 5, 2018, https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2705850.
125 Prepare for Your Care: https://prepareforyourcare.org/welcome.
125 downloaded for your state: “Downloading Your State’s Advance Directive,” National Hospice and Palliative Care Organization, https://www.nhpco.org/patients-and-caregivers/advance-care-planning/advance-directives/downloading-your-states-advance-directive/.
126 Social Security: “Form SSA-1696—Appointment of Representative,” U.S. Social Security Administration, https://www.ssa.gov/forms/ssa-1696.html.
126 Medicare: “Appointment of Representative,” U.S. Centers for Medicare & Medicaid Services, https://www.cms.gov/Medicare/CMS-Forms/CMS-Forms/downloads/cms1696.pdf.
127 state directory: “Click a state for more information,” National POLST Paradigm, https://polst.org/programs-in-your-state/.